Blanket Consent and Trust in the Biobanking Context
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Blanket Consent and Trust in the Biobanking Context. / Nielsen, Morten Ebbe Juul; Kongsholm, Nana Cecilie Halmsted.
In: Journal of Bioethical Inquiry, Vol. 19, 36068428, 06.09.2022, p. 613–623.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Blanket Consent and Trust in the Biobanking Context
AU - Nielsen, Morten Ebbe Juul
AU - Kongsholm, Nana Cecilie Halmsted
N1 - Publisher Copyright: © 2022, Journal of Bioethical Inquiry Pty Ltd.
PY - 2022/9/6
Y1 - 2022/9/6
N2 - Obtaining human genetic samples is vital for many biobank research purposes, yet, the ethics of obtainment seems to many fraught with difficulties. One key issue is consent: it is by many considered ethically vital that consent must be fully informed (at least ideally speaking) in order to be legitimate. In this paper, we argue for a more liberal approach to consent: a donor need not know all the specifics of future uses of the sample. We argue that blanket consent is ethically defensible, and that this is buttressed by considerations of (justified) trust-relations. Given robust institutional oversight, blanket consent is a permissible form of consent in the bio-banking context.
AB - Obtaining human genetic samples is vital for many biobank research purposes, yet, the ethics of obtainment seems to many fraught with difficulties. One key issue is consent: it is by many considered ethically vital that consent must be fully informed (at least ideally speaking) in order to be legitimate. In this paper, we argue for a more liberal approach to consent: a donor need not know all the specifics of future uses of the sample. We argue that blanket consent is ethically defensible, and that this is buttressed by considerations of (justified) trust-relations. Given robust institutional oversight, blanket consent is a permissible form of consent in the bio-banking context.
KW - biobanking
KW - blanket consent
KW - Consent
KW - trust
U2 - 10.1007/s11673-022-10208-5
DO - 10.1007/s11673-022-10208-5
M3 - Journal article
C2 - 36068428
AN - SCOPUS:85137472120
VL - 19
SP - 613
EP - 623
JO - Journal of Bioethical Inquiry
JF - Journal of Bioethical Inquiry
SN - 1176-7529
M1 - 36068428
ER -
ID: 321468226